“Alyssa, this is the best you’ve ever looked to me,” my gastroenterologist recently exclaimed during a routine appointment. Though I hadn’t felt my best internally, I took her word for it. After all, ...
Muscular Dystrophy Association (MDA) is the #1 voluntary health organization in the United States for people living with muscular dystrophy, ALS, and over 300 related neuromuscular conditions. For ...
Kevin Schaefer, who lives with SMA type 2, and neurologist Edward Smith, MD, reflect on their preferences for how to go about discussing difficult care decisions or bad news. Dr. Smith: I don’t think ...