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hemophilianewstoday
16 小时
What does a minor cut do to someone with hemophilia?
Columnist Alliah Czarielle clears up some common misconceptions about what happens when people with hemophilia have minor cuts or abrasions.
hemophilianewstoday
3 天
FDA approves marstacimab, now Hympavzi, for hemophilia
The FDA has approved Pfizer’s marstacimab under the brand name Hympavzi for adults and children with hemophilia A or B, ...
hemophilianewstoday
6 天
Hemophilia gene therapy Beqvez reduces bleeds in Phase 3 trial
Beqvez (fidanacogene elaparvovec) led to about three times fewer bleeding episodes than preventive treatment with regular ...
hemophilianewstoday
4 天
Letting go of the past is hard, but I look forward to my sons’ futures
Now that his sons are grown, columnist Joe MacDonald struggles with letting go of the past and moving on from his role as a caregiver.
hemophilianewstoday
5 天
The spectrums of color and pain for a young man with hemophilia
MacDonald talks with her 18-year-old son, Caeleb, about how chronic pain affects his life and perception of color.
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